My name is Kären.
Being a Libra, I used to joke that I was blind but well-balanced. One day nearly twenty years ago, however, I woke up for work but barely made it because I had begun to lose my balance. I still could see, but from that day on I went from a cane to a walker to a wheelchair.
Throughout the decline and with the knowledge that my fob would soon end, my supervisors embarked on qualifying me for disability and early retirement. They were successful. My doctors assisted me in securing the best medications available for me at each stage. I had wonderful caregivers from VNA to private in-home care.
But my greatest friend and supporter was my husband of 27 years. He has anticipated my needs even before the inevitable. Unlike those who would left me because of my condition, he stands by me and he's keeping our vows of "in sickness and in health." I thank him and others who offered to help and challenge me.
My activities include Adapted P.E. at MPC for body exercise, computer class at Pacific Grove Adult School, one movie a week, watching TV, sending cards and letters, taking day trips and weekends for mental exercises. I am also reading a lot; in fact, I keep a book in my purse at all times since my life is "hurry up and wait."
I am grateful for the MST RIDES program, friends willing to take me places in their cars and vans and trans for a scenic view. My husband and I have taken two cruises: one to Alaska and the other from England via the North Atlantic. My destinations are to cooler climates because heat is too debilitating.
Handicapped accommodations have made it all possible. Our car trips are air-conditioned, but there is nothing better than being pushed in my wheelchair to Fisherman's Wharf, Customs House Plaza events, Trader Joe's, and Dennis the Menace Par, The sights, smells, smiles, and sun are so worth it. The sidewalks and most restaurants are accessible today, so we don't have to be the shut-ins of the past.
My life with MS has been gradual and fairly pain-free. My father and I were diagnosed at age 50. He lived and other 20 years on. I've had exacerbations that affect my status quo; handwriting, memory, etc. I broke my leg at home, was hospitalized, and recuperated at a local convalescent hospital--but am finally at home where I belong.
What will tomorrow bring? I have no idea. The frustration will test me. With the help and support of my caregivers, friends, and especially my loving husband, I hope to survive my challenges. Reach out--there is a hand to hold, help, and guide. Keep old memories alive but bridge and get over them, and now, make new memories.